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Explore carabeana's Instagram We have been very busy!  One of the new drugs Marsh is getting during this phase makes him very nauseous.  That combined with moodiness from the steroids makes him a bit of monster boy!  His feeding tube got seriously clogged so we took it out for the night.  Back to the clinic tomorrow for a new one!  #SuperMarshMan #leukemiafighter #leukemiawarrior 1627920114483531917_4287481

We have been very busy! One of the new drugs Marsh is getting during this phase makes him very nauseous. That combined with moodiness from the steroids makes him a bit of monster boy! His feeding tube got seriously clogged so we took it out for the night. Back to the clinic tomorrow for a new one! #SuperMarshMan #leukemiafighter #leukemiawarrior

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Explore carabeana's Instagram Little dude started the next round of treatment this morning.  He had a lumbar puncture with chemo in his spinal fluid, 2 other chemotherapy drugs through his port, and he started a 7 day pulse of steroids  I better go shopping for some snacks!  He is feeling pretty good so far but most likely due to anti-nausea meds we gave him.  This pic is him waking up from sedation this morning.

#supermarshman #leukemiafighter #leukemiawarrior 1622708112639328884_4287481

Little dude started the next round of treatment this morning. He had a lumbar puncture with chemo in his spinal fluid, 2 other chemotherapy drugs through his port, and he started a 7 day pulse of steroids I better go shopping for some snacks! He is feeling pretty good so far but most likely due to anti-nausea meds we gave him. This pic is him waking up from sedation this morning. #supermarshman #leukemiafighter #leukemiawarrior

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Explore carabeana's Instagram Future Psychometrist! 
Marshall's walking has improved a bit, but he is still not where we would like him to be.  So today we went and got fitted for braces (<--swipe). The building just happened to be next to my work, so we stopped in for a visit!  #supermarshman #leukemiafighter #leukemiawarrior 1619735035773124702_4287481

Future Psychometrist! Marshall's walking has improved a bit, but he is still not where we would like him to be. So today we went and got fitted for braces (<--swipe). The building just happened to be next to my work, so we stopped in for a visit! #supermarshman #leukemiafighter #leukemiawarrior

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Explore carabeana's Instagram At the clinic today only for blood counts to make sure he can go to his dentist appointment tomorrow.  Counts were perfect so he is cleared to get 3 fillings!  #SuperMarshMan #leukemiafighter #leukemiawarrior 1613205867568581431_4287481

At the clinic today only for blood counts to make sure he can go to his dentist appointment tomorrow. Counts were perfect so he is cleared to get 3 fillings! #SuperMarshMan #leukemiafighter #leukemiawarrior

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Explore carabeana's Instagram Mama's superhero  #SuperMarshMan 1610531465949400717_4287481

Mama's superhero #SuperMarshMan

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Explore carabeana's Instagram Chemo day again, but you wouldn't know by the way Marsh is acting.  We have a bit of break before the next phase of treatment, Delayed Intensification, which I'm hoping is not as bad as I hear it is . One of the drugs is causing some nerve damage so be will also be getting some custom orthodics or a brace to help him walk. #SuperMarshMan #leukemiafighter #leukemiawarrior 1609748953870378328_4287481

Chemo day again, but you wouldn't know by the way Marsh is acting. We have a bit of break before the next phase of treatment, Delayed Intensification, which I'm hoping is not as bad as I hear it is . One of the drugs is causing some nerve damage so be will also be getting some custom orthodics or a brace to help him walk. #SuperMarshMan #leukemiafighter #leukemiawarrior

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Explore carabeana's Instagram We are HOME!  What they think was a virus must have passed quickly because this guy is back to normal   thanks to his white blood cells for not giving up the fight! 

#SuperMarshMan #leukemiafighter #leukemiawarrior 1608217298127150339_4287481

We are HOME! What they think was a virus must have passed quickly because this guy is back to normal thanks to his white blood cells for not giving up the fight! #SuperMarshMan #leukemiafighter #leukemiawarrior

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Explore carabeana's Instagram Unexplained fever headache nausea so we will be here for a few days to figure it out.  #SuperMarshMan #leukemiafighter #leukemiawarrior 1606682245031081946_4287481

Unexplained fever headache nausea so we will be here for a few days to figure it out. #SuperMarshMan #leukemiafighter #leukemiawarrior

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Explore carabeana's Instagram Back at the hospital this morning.  Marsh was in really bad shape last night and this morning.  We saw his NG tube wasn't in properly and tired to fix it ourselves.  Well that didnt go well and he ripped it out.  They are checking for viruses and did an xray but my guess is the NG tube was making him sick.  All his counts were good on Tuesday so I  hoping they are still good today just in case!  #SuperMarshMan #leukemiafighter #leukemiawarrior 1605969440749547149_4287481

Back at the hospital this morning. Marsh was in really bad shape last night and this morning. We saw his NG tube wasn't in properly and tired to fix it ourselves. Well that didnt go well and he ripped it out. They are checking for viruses and did an xray but my guess is the NG tube was making him sick. All his counts were good on Tuesday so I hoping they are still good today just in case! #SuperMarshMan #leukemiafighter #leukemiawarrior

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Explore carabeana's Instagram This guy has had a hard day so far.  He will barely walk and when he does he tip toes for a few steps then asks to be picked up.  We have had to give him anti nausea meds twice so far.  He has also started to screetch and cry while he paws at his forehead.  We called the Dr and they think its just a headache from the chemo on Tuesday, but its still hard to watch when you can't do anything to take the pain away . He is definitely my superhero . #SuperMarshMan #leukemiafighter #leukemiawarrior 1605292991218484781_4287481

This guy has had a hard day so far. He will barely walk and when he does he tip toes for a few steps then asks to be picked up. We have had to give him anti nausea meds twice so far. He has also started to screetch and cry while he paws at his forehead. We called the Dr and they think its just a headache from the chemo on Tuesday, but its still hard to watch when you can't do anything to take the pain away . He is definitely my superhero . #SuperMarshMan #leukemiafighter #leukemiawarrior

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Explore carabeana's Instagram Marshall's new friend @markpostma77 hooked him up with some puptastic swag!  He was so excited he tried to convince us to put them in the living room...so we compromised ...and they are TEMPORARILY hanging in the living room . #allfiredup #SuperMarshMan 1604772968733367459_4287481

Marshall's new friend @markpostma77 hooked him up with some puptastic swag! He was so excited he tried to convince us to put them in the living room...so we compromised ...and they are TEMPORARILY hanging in the living room . #allfiredup #SuperMarshMan

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Explore carabeana's Instagram Marsh went to the clinic today for chemo, lumbar puncture, and an echo.  He did really well- he even sat and got his finger poke all by himself with no crying!! It took him a while to come out of sedation which was pretty funny (see Instastories!). #SuperMarshMan #leukemiafighter #leukemiawarrior 1602403296981782535_4287481

Marsh went to the clinic today for chemo, lumbar puncture, and an echo. He did really well- he even sat and got his finger poke all by himself with no crying!! It took him a while to come out of sedation which was pretty funny (see Instastories!). #SuperMarshMan #leukemiafighter #leukemiawarrior

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Explore carabeana's Instagram Marshall had quite the day today!  These beautiful people (2nd pic) from @intltrends sponsored and set up this playground for Marshall.  We had to keep him out of the house so we spent time at a neighbors and had a visit/playdate with old roomies from my U of G days!  When we got back home we had the big unveiling of the playground and Marsh got a special medal.  Marshall loves his new playground!!! #milliondollarsmiles #supermarshman #leukemiawarrior #leukemiawarrior 1600339885129077415_4287481

Marshall had quite the day today! These beautiful people (2nd pic) from @intltrends sponsored and set up this playground for Marshall. We had to keep him out of the house so we spent time at a neighbors and had a visit/playdate with old roomies from my U of G days! When we got back home we had the big unveiling of the playground and Marsh got a special medal. Marshall loves his new playground!!! #milliondollarsmiles #supermarshman #leukemiawarrior #leukemiawarrior

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Explore carabeana's Instagram We painted more rocks!  And Marsh made a painting  (swipe <-) it was a lot messier than I had anticipated #burlingtonrocks #gogold #SuperMarshMan 1598762471458589667_4287481

We painted more rocks! And Marsh made a painting (swipe <-) it was a lot messier than I had anticipated #burlingtonrocks #gogold #SuperMarshMan

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Explore carabeana's Instagram So I didn't realize that when I said "shave it off" it meant shave it ALL off   good thing he's cute.  We are coming up to a new phase of chemo (Delayed Intensification) where he is expected to lose everything including eyebrows and lashes! #baldisthenewmanbun #SuperMarshMan #leukemiafighter #leukemiawarrior #chemocut 1597965545133736050_4287481

So I didn't realize that when I said "shave it off" it meant shave it ALL off good thing he's cute. We are coming up to a new phase of chemo (Delayed Intensification) where he is expected to lose everything including eyebrows and lashes! #baldisthenewmanbun #SuperMarshMan #leukemiafighter #leukemiawarrior #chemocut

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Explore carabeana's Instagram Made some cancer awareness rocks to hide with the Burlington Rocks (ON) campaign for some kiddos to find.  Ever since we learned about these rocks Marsh and I have been looking for them everywhere!  Thought we should make some of our own   while raising awareness for Childhood Cancer.  #burlingtonrocks #gogold #morethan4 #SuperMarshMan #leukemiafighter #leukemiawarrior 1595207067499719103_4287481

Made some cancer awareness rocks to hide with the Burlington Rocks (ON) campaign for some kiddos to find. Ever since we learned about these rocks Marsh and I have been looking for them everywhere! Thought we should make some of our own while raising awareness for Childhood Cancer. #burlingtonrocks #gogold #morethan4 #SuperMarshMan #leukemiafighter #leukemiawarrior

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Explore carabeana's Instagram They're in!! #SuperMarshMan 1594491236759190914_4287481

They're in!! #SuperMarshMan

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Explore carabeana's Instagram September is Childhood Cancer Awareness Month!  We went to the clinic for chemo today and we got a number of things checked out.  Physio thinks his leg is just weak and having a hard time adjusting to Marshall's energy level now that he feels better. We will keep monitoring it for peripheral neuropathy from the drugs.  We are also decreasing his feed with the hopes he will eat more actual food.  Marshall also got a bone density scan!  Busy day but we were still out by 11am! 
Everyone seems to be getting their #SuperMarshMan shirts in the mail which is awesome!  Thanks everyone!  If you missed out you can still order a t-shirt with the next batch at: www.bonfire.com/SuperMarshMan 
#leukemiafighter
#leukemiawarrior 1593652049617144015_4287481

September is Childhood Cancer Awareness Month! We went to the clinic for chemo today and we got a number of things checked out. Physio thinks his leg is just weak and having a hard time adjusting to Marshall's energy level now that he feels better. We will keep monitoring it for peripheral neuropathy from the drugs. We are also decreasing his feed with the hopes he will eat more actual food. Marshall also got a bone density scan! Busy day but we were still out by 11am! Everyone seems to be getting their #SuperMarshMan shirts in the mail which is awesome! Thanks everyone! If you missed out you can still order a t-shirt with the next batch at: www.bonfire.com/SuperMarshMan #leukemiafighter #leukemiawarrior

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Explore carabeana's Instagram Our walk started off ok but Marshall's feet started to hurt quite a bit.  Pain and numbness in the extremities is a normal side effect of one of the drugs he is taking.  He favours his left leg, falls down frequently, and often needs to be strolled around or carried by dad. 
Also baby Leo took a tumble and has quite the boo boo!  But don't worry he is ok and doesnt remember a thing. 
#SuperMarshMan #leukemiafighter #leukemiawarrior #leobaby 1592149773648101584_4287481

Our walk started off ok but Marshall's feet started to hurt quite a bit. Pain and numbness in the extremities is a normal side effect of one of the drugs he is taking. He favours his left leg, falls down frequently, and often needs to be strolled around or carried by dad. Also baby Leo took a tumble and has quite the boo boo! But don't worry he is ok and doesnt remember a thing. #SuperMarshMan #leukemiafighter #leukemiawarrior #leobaby

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Explore carabeana's Instagram My little ghost buster and his sidekick.  Marsh had so much energy today he wore all of us out.  We have been able to increase his feed rate X3 since they fixed it, so he is getting lots of food and water now.  We had lots of fun with water balloons today!  #SuperMarshMan #leobaby #leukemiafighter 1588048970800862114_4287481

My little ghost buster and his sidekick. Marsh had so much energy today he wore all of us out. We have been able to increase his feed rate X3 since they fixed it, so he is getting lots of food and water now. We had lots of fun with water balloons today! #SuperMarshMan #leobaby #leukemiafighter

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